I am going to tell you the story of a very lucky woman.
Her fifth child was born
with a highly unusual genetic disorder. He could not suck. He had no soft spot because
his skull bones had fused before he was born. The doctors said that he would not
walk, talk or survive beyond the age of two and should be put into an
institution. But she was a very lucky woman. The community rallied to provide
support. Her mother-in-law’s work colleagues built a special chair to feed him in,
a scooter to teach him to crawl, and later, a table to help strengthen his legs
so that he would learn to stand and later walk. Before special education was
required, her community had a free school for children with significant disabilities.
Yes, she was a very lucky woman. Her son learned to walk unsteadily, feed
himself, and communicate with sounds and modified sign language.
Three children after the birth of her son with disabilities,
her husband was in a major train accident. He suffered a traumatic brain
injury. But she was a very lucky woman. The community rallied again. They took
care of the children, three of whom were in cloth diapers, brought meals,
helped with transportation and therapy and made sure things around the house
got done. If she was at the hospital, people
were home to welcome the children as they got off the bus. She was a very lucky woman.
Thereafter, her husband only periodically held down a job so
money was tight. The school and community stepped up. Food stamps, unemployment
and disability payments, and community discounted health insurance provided
support. Fieldtrips, roller skating parties, dues for scouts and fees for summer
rec programs were all funded so the kids could share experiences with their
friends. Christmas and Easter brought a bonanza a food and gift baskets for the
family when things were tight. Yes, she was a very lucky woman.
We can all make families in crisis very lucky. Providing support
for such people makes them very lucky and helps keep their children from
falling through the cracks. As PTA members we fight for the social services,
school supports and laws that help protect these vulnerable families. We all
play an important role. When we work together we can achieve great things for
children everywhere and all our community can be very lucky.
No comments:
Post a Comment